{"id":8895,"date":"2023-09-21T11:31:41","date_gmt":"2023-09-21T08:31:41","guid":{"rendered":"https:\/\/dementsus.ee\/?p=8895"},"modified":"2023-11-30T21:26:41","modified_gmt":"2023-11-30T19:26:41","slug":"dementsuse-haardes-proua-tiina-ja-proua-maie-inspireerivad-lood","status":"publish","type":"post","link":"https:\/\/dementsus.ee\/en\/dementsuse-haardes-proua-tiina-ja-proua-maie-inspireerivad-lood\/","title":{"rendered":"Dementsuse haardes: proua Tiina ja proua Maie inspireerivad lood"},"content":{"rendered":"

T\u00e4na, rahvusvahelisel Alzheimeri p\u00e4eval, soovime jagada kahte s\u00fcdamlikku kogemuslugu. Need on lood kahest vaprust t\u00e4is naisest, kes seisavad silmitsi ajuhaiguse keerulise reaalsusega.\u00a0 Astume hetkeks nende maailma, et kuulata nende lugusid ja jagada nende tundeid. Loodame, et need kogemuslood\u00a0 aitavad meil olla toetavamad ja m\u00f5istvamad nendele, kes on seda v\u00e4ljakutseterohket teekonda l\u00e4bimas.<\/p>\n

Esimene kogemuslugu – <\/strong>Silmapilgutus universumis<\/strong><\/h3>\n
\"Foto:<\/a>
Foto: freepik<\/figcaption><\/figure>\n

\u201eElu on silmapilgutus universumis,\u201c \u00fctles proua Tiina, kui k\u00fcsisin, kuidas ta suhtub ellu, mis on \u00fchtekokku p\u00f5iminud igap\u00e4evaelu toimetused, liikumispuude, Alzheimeri t\u00f5ve, tohutu tahte elada ja positiivse energia. Mul on nii hea meel, et sain proua Tiinalt loa jagada tema siiraid, avatuid ja elutervemaid m\u00f5tteid teistele samas olukorras olevatele inimestele.<\/p>\n

Millised tunded Teid valdasid kui saite teada, et Teil on varase algusega Alzheimeri t\u00f5bi?\u00a0<\/em><\/h4>\n

Teate, see pole ju nakkushaigus. Ma panin juba 4 aastat tagasi t\u00e4hele, et ma ei taha enam \u00f5mmelda ja ma ei ole suuteline kuduma. Ma olen kogu oma elu \u00f5mmelnud ja kudunud k\u00f5ikidele oma lastele ja l\u00e4hedastele. Andsin k\u00f5ik oma l\u00f5ngad kohalikule lasteaiale meisterdamiseks.
\nMa ei l\u00e4inud sellest depressiooni, vaid hakkasin m\u00f5tlema sellele, mida k\u00f5ike ma peaksin enne \u00e4ra tegema, kui ma asjadest \u00fcldse enam aru ei saa.<\/p>\n

Kuidas on Alzheimeri diagnoos muutnud Teie suhtumist ellu?\u00a0<\/em><\/h4>\n

Kuna ma olen juba 34 aastat olnud liikumispuudega inimene, siis v\u00f5tsin juba ammu selle seisukoha, et tuleb oma haigusega olla s\u00f5ber. Vahel olen endale v\u00f5tnud p\u00e4eva jooksul ette liigselt asju, aga igakord ei ole mul jaksu k\u00f5ike l\u00f5puni teha ja asjad j\u00e4\u00e4vad pooleli, siis m\u00f5tlen, et ah las need asjad siis ootavad seda p\u00e4eva kui tuleb rohkem energiat ja tahtmist. Kui sul on k\u00e4ed\/ jalad haiged, aga m\u00f5istus terane, siis on veel h\u00e4sti, aga kui on vastupidi, siis see on v\u00e4ga raske. Niikaua kui ma suudan m\u00f5elda positiivselt ja olla tegus, siis ma ei saa nuriseda. Inimese elu on silmapilgutus siin universumis.<\/p>\n

Mis m\u00f5tetega l\u00e4hete tulevikule vastu?\u00a0<\/em><\/h4>\n

Kurvaks teeb muidugi see kui ma loen dementsuse ja Alzheimeri t\u00f5ve kohta kirjandust. Ei taha kohe mitte oma l\u00e4hedastele vaevaks olla. Mulle on t\u00e4htis, et tulevikus mu omastel oleks toetus ja et mul oleks k\u00f5ht t\u00e4is -ega ma v\u00e4ga muud ei oska soovida. Ostsin endale poest raamatu \u201eP\u00e4randi kavandamise juhend\u201c ja p\u00fc\u00fcan seda t\u00e4ita, et tulevikus oleks l\u00e4hedaste tarvis olulised asjad \u00fches kohas kirjas.<\/p>\n

Mind on aidanud suhtumine, et tuleb olla teadlik oma haigusest ja teha ise k\u00f5ik vajalikud otsused ja tegevused \u00e4ra, mis v\u00f5imalikud. Dementsuseteemalised tugigrupid on mind haigusega kurssi viinud, olen saanud sealt lugemismaterjali ja head n\u00f5u, milline on see haigus ja millele m\u00f5elda. Tugigruppides saan ka n\u00f5u ja tuge pakkuda teistele, mul ei ole raske jagada oma lugu, ma ei h\u00e4bene ega varja oma m\u00e4luh\u00e4iret.<\/p>\n

Teine kogemuslugu – <\/strong>M\u00e4lestuste sabad<\/strong><\/h3>\n
\"\"<\/a>
Foto: freepik<\/figcaption><\/figure>\n

\u00dchel suvisel p\u00e4eval oli mul v\u00f5imalus viibida \u00fches p\u00e4evakeskuses ja vestelda v\u00e4ga meeldiva ja v\u00e4ljapeetud olemisega proua Maiega (nimi muudetud). Alguses me jutustasime teiste klientidega koos \u00fchise laua taga, aga m\u00f5ne aja p\u00e4rast liikus proua Maie teise tuppa ja asus m\u00f5nusas tugitoolis\u00a0 oma m\u00e4rkmikusse sissekandeid tegema. Kuna mul oli aega, siis ma tegin temaga juttu.<\/p>\n

Proua Maie, kas Te peate p\u00e4evikut?\u00a0<\/em><\/h4>\n

Jah, tuleb pidada, kuna mu m\u00e4lu pole enam endine. Panen kirja k\u00f5ik, mis p\u00e4eva jooksul on toimunud, siis \u00f5htul saan kodus k\u00f5ik \u00fcle lugeda ja meenutada. Ehk mu m\u00e4lu siis veel s\u00e4ilib. Ilma selle p\u00e4evikuta ma ei saa, sest siis on k\u00f5ik s\u00fcndmused meelest l\u00e4inud.<\/p>\n

Kaua Teil m\u00e4luh\u00e4ire on juba olnud?\u00a0\u00a0<\/em><\/h4>\n

Minu meelest algas see hiljuti, mulle tuli see v\u00e4ga \u00e4kki, ma t\u00e4pselt ei m\u00e4leta, mis juhtus.<\/p>\n

Kas Te saate \u00f6elda, mis tunne see on, kui m\u00e4lu ei ole?\u00a0<\/em><\/h4>\n

Teate, see on selline tunne, et ma k\u00f5nnin m\u00f6\u00f6da pikka ja kitsast purret jalg jala ette ja samal ajal see purre k\u00f5igub – \u00fcmberringi on udu. Ma n\u00e4en oma m\u00e4lestusi, mis vilksatavad udu seest korraks v\u00e4lja ja siis j\u00e4lle kaovad lupsti udu sisse tagasi. Ma p\u00fc\u00fcan neil sabast kinni haarata ja ruttu m\u00e4rkmikusse \u00fcles kirjutada – v\u00e4hemalt seda saba otsa.<\/p>\n

Kuidas Te sellega vaimselt toime tulete?\u00a0<\/em><\/h4>\n

Ma p\u00fc\u00fcan kogu aeg leida tagasiteed, ehk m\u00e4rkan kuskil teeotsa, mis viib mind endisesse olekusse, sellesse aega, kus mul oli m\u00e4lu, aga ma ei leia seda.<\/p>\n

See on nii, et neil kellel ei ole jalga v\u00f5i k\u00e4tt, on v\u00f5imalik soetada protees v\u00f5i kark\u00a0 ja j\u00e4lle oma toimetusi edasi teha. \u00d5nneks mind hetkel toetab p\u00e4evik- see on minu kark.<\/p>\n

Suur t\u00e4nu Teile, proua Tiina ja proua Maie, nende hindamatute vestluste eest!<\/p>\n

Soovime proua Tiinale ja proua Maiele helgust ja hoitust sellel teekonnal dementsusega!<\/p>\n

Dementsuse Kompetentsikeskus<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

T\u00e4na, rahvusvahelisel Alzheimeri p\u00e4eval, soovime jagada kahte s\u00fcdamlikku kogemuslugu. Need on lood kahest vaprust t\u00e4is naisest, kes seisavad silmitsi ajuhaiguse keerulise reaalsusega.\u00a0 Astume hetkeks nende maailma, et kuulata nende lugusid ja jagada nende tundeid. Loodame, et need kogemuslood\u00a0 aitavad meil olla toetavamad ja m\u00f5istvamad nendele, kes on seda v\u00e4ljakutseterohket teekonda l\u00e4bimas. Esimene kogemuslugu – Silmapilgutus […]<\/p>\n","protected":false},"author":13,"featured_media":8897,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"autor":[32],"class_list":["post-8895","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-maaratlemata","autor-hanna-stiina-heinmets"],"yoast_head":"\nDementsuse haardes: proua Tiina ja proua Maie inspireerivad lood<\/title>\n<meta name=\"description\" content=\"T\u00e4na, rahvusvahelisel Alzheimeri p\u00e4eval, soovime jagada kahte s\u00fcdamlikku kogemuslugu. 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